Old Posts

This is one of those promised posts from the time Cara was in the neonatal ICU.

July 1, 2008
What an emotional day! Full of highs and lows. I'm exhausted, but want to make a record of our journey, before too much of it slips away in forgetfulness. I feel as though I've slipped back into the dark ages by using this pen. It might as well be a feather, and this jar of spinach dip at my elbow, an ink pot.
My first tears of the the day hit at 11:00, when the speech therapist cane in to give Cara her bottle. She is taking two bottle feeds every 24 hours, with the day feed supervised by the speech therapist. Don't ask me why she is called a 'speech' therapist when her sole occupation is feeding infants who are totally inarticulate. Be that as it may, she is very good at what she does. This morning she wanted me to try to give Cara the bottle, while she watched. She was gentle in her suggestions and tips, but there is so much to remember. It is nothing like nursing or even bottle feeding a full term baby. Finally, I asked the speech therapist to take over. I didn't want Cara to miss out on her feeding because I couldn't get it together. As we transferred Cara and she took over the bottle, the tears began to gather. I'm not used to feeling inadequate when it comes to mothering. I'm usually the "experienced mom" who everyone else comes to with their questions and concerns. All of my confidence deserted me as I watched a stranger expertly nourishing that tiny, teeny baby--my baby--while I sat by, useless. The tears dripped down and I dabbed them with a burp rag.
The nurses were very supportive, and assured me that I will improve with time, but is a humbling, frustrating experience, all the same.

*I did get it, too. I feed her now with all the techniques, and don't even think about it. Of course, she is able to take the bottle more normally, as well.

The second round of tears were tears of joy and relief. I had just about given up hope that we would hear the test results today. The neonatalogist was late for rounds and when he finally arrived, went through his whole spill on lipids, and CC's and brain sonograms, etc., and I'm wondering how I will be able to stand another night of this agony? He finally comes to the end and says, "Any questions?"
"Do you think we will get the results from the PCR tomorrow?"
"Oh...." he's checking on his laptop, "We already have that..."
Umm....that was important! Life and death important! What part of, "Please notify us immediately of the test results," was confusing for you? In that split second, I'm sure the world stood still.
"Negative."
"Praise God."
And praise Him and praise Him.

July 2, 2008

Some ground gained today and some lost. Cara came off of isolation. That means that I do not have to suit up in a surgical drape and wear gloves when touching her. She is so soft! Cara was moved from a warmer to a crib. I can now dress her. The only problem is, I didn't bring any of her already substantial wardrobe. What was I thinking? The nurses put her in a terribly ugly wrap--complete with hospital stamp. It did nothing for her. So I walked over to the resale shop (run by the hospital volunteer auxiliary) and bought the only preemie onesie they had. It may not like much, but it is a huge improvement.
And the bad news: Cara is still losing weight. It is very discouraging. Tomorrow, I'm not going to hold her at all, in case the movement from bed to arms and back again is causing her to expend more calories.

* I wasn't able to follow through with that. I just couldn't help picking her up! She needed her Mommy snuggles. The next day, the doctors finally listened to reason and switched her to breast milk, and she did wonderfully after that.